The person who didn't get sequela of the allusion quatation discusses the person who didn't get sequela of the allusion quatation is grieved: The hormone treatment makes his disease burdened with

The person who didn't get sequela of the allusion quatation discusses the person who didn't get sequela of the allusion quatation is grieved: The hormone treatment makes his disease burdened with
The person who didn't get sequela of the allusion quatation discusses the person who didn't get sequela of the allusion quatation is grieved: The hormone treatment makes his disease burdened with
The news of China Daily net: In-depth reporting of February 25 of English " China Daily ": Square Bohai Sea once quilt " The hero " Ring of light shroud. Seven years ago " SARS " In the war of resistance, he has overcome the fatal virus, has become the hope of resisting SARS victory under the spotlight of the media, surrounded by flowers and the blessing. Seven years later, the already 58 -year-old side Bohai Sea became a SARS survivor forgotten. The hormone treatment that once saved his life lets present his disease burdened with. Two hips of his are while climbing a big long scar of 30 centimetre - -Trace left in operation that the head of femur is replaced. Left him sequela of osteonecrosis by hormone treatment which he accepted in 2003. One pair of knees and both shoulders of his has been influenced by sequela. " the bone of my whole body becomes as fragile as gypsum, " He says. This Beijing cook retiring can still nowadays walk but live in the illness with no limits. "Osteonecrosis will not kill me at once, but the one that can torment me slowly latter half of one's life. " In the period for great outburst of SARS, over 5000 people are infected in China's Mainland, 349 people among them die of SARS. SARS seizes wife and wife sister in square Bohai Sea. After accepting the treatment for 40 days and fully recovering and leaving hospital, donate his serum with an antibody and express willingness to donate the remain to use as medical research after death in square Bohai Sea. " I am healthy again, " He is accepting CCTV " Face-to-face " The program is said while interviewing. "I want to help people to resist SARS, just the same as everybody helps me. I believe my future life is still bright. " But six months later, he is diagnosed as osteonecrosis. 05,He made the head of femur of both sides and replaced the operation separately in 06. Last year, doctors took out chip that the nail overlayed the size from his broken right shoulder joint. "Each media reports and says people will not forget, will not forget us. But when I finish the operation and lie in bed, where are they all? " Have cried out in square Bohai Sea. In front of fall scattered in sick bed clip newspaper that collect he been,be lasted he once surprising recovery and not last doctors of him. There are more than 300 persons who didn't get sequela of the allusion quatation like square Bohai Sea in Beijing, there is some too in the other cities, but there is less quantity, Chen Wei's weighing apparatus doctor introduces. It is a doctor of dept. of orthopedics of Wangjing hospital to be old, he explains more than half SARS cases are in Beijing, because a part among them treats the side effect and suffers from osteonecrosis, lung fiber and depression. "The sequela can't be totally cured, the patient must face and use medicine all the life, "He says. Square Bohai Sea of struggle with serious illness can only fight in isolation this time. 7 relatives of his were all infected with SARS and influenced by sequela that year. Visible Beijing hospital spend in most time him. Even if is after a major operation, his family seldom come to see him. "Family of me very much difficult to look after in even oneself, how to come to look after me? " He says. His only partner is his " Ward mate " --His person who didn't get sequela of the allusion quatation in the same ward follow. "Where is if our deformity of the capital? Who comes to look after me? " 51 -year-old Li Chao east say. He and wife Bao BaoQin are victims of sequela. "Nobody tells me about the side effect of the hormone treatment, but I do not want to investigate, this kind of treatment has rescued my life after all. Do I only care now, what if my latter half of one's life? " Last year, square Bohai Sea that lived in Beijing dropped to into the apartment but unable to get up. His ill trick can't support his weight. Lie when ground desperate, he think of, commit suicide even, find even if commit suicide oneself to be even unable to accomplish. This is a greater blow to him. "I wanted to jump down from the 11th floor at that time, but how did I accomplish? I can not even do to get up. I thought SARS was a nightmare, but I was wrong. After the greatest agony comes from SARS. " In 2004, government's organization released a list including 300 sequela patients two years later to the investigation of SARS survivor. "List dynamic, find the new patient can supplement in at any time, "Doctor Chen introduces. "Main sequela have osteonecrosis, lung fiber take and depression, government will wipe out person at the list in order to treat all hospitalization cost of sequela. " Wangjing hospital is one of the fixed hospitals of a dozen persons who didn't get sequela of the allusion quatation of Beijing. "4, 50 people treatment of my hospital often comes, the most serious patient has 29 sites of necrosis all over, "Doctor Chen says. He introduce one treatment of course of treatment spend in 10,000 yuan about probably 3 month, if make the joint and replace the operation, it will be above 50,000 to spend. The government pays the funeral expenses of 5000 yuan to each of the dead of SARS. The red cross association of China gives each sequela patient some subsidy every year from 2008. Give 4000 yuan with work, there is not 8000 yuan of the job. " whether come devide, each of us can get 300 to 600 month, " And then say. "Even board expenses are not enough, let alone being please partial to workers. Moreover, we do not know either the subsidy can last until when. " After finishing the operation, what the sequela patient needs to attend to in 24 hours is partial to workers, if will be paralysed and needed full-time protecting engineering especially in the future. Though there is pension of 2000 yuan oneself each month in the side, the government helps him to offer the medical fee used for treating, can't afford protecting engineering of 1500 yuan for a month in square Bohai Sea. Square Bohai Sea begins to smoke again. He has originally already given up smoking for 5 years. Though he knows that smoking will aggravate the burden of the lung, he says he can not smoke. When interviewed by " China Daily ", he is taking the oxygen to be in charge of but still smoke. The nurse has come in to take his temperature to leave, nothing is said. "The nurses have already given up persuading me to give up smoking, they know this is my only way to give vent to mood. Pressure that osteonecrosis bring too getting large, if I can release me estimate that can be really mad by even cigarette. " The side is diagnosed as depression in 08. Last year, he jabed the wounded one's own forehead with the broken wine bottle in extremely desperate cases. August of 06, side and some other " ward mates " Have done questionnaire investigation to more than 110 sequela patients in Beijing. They find 88% of the people have osteonecrosis symptom, 80% have lost the work or lost ability to work because of the osteonecrosis, 74% have suffered from the depression at various degrees. 60% of the families were divorced in the past seven years. " SARS has changed the patient's life, " Long Mei, 45 -year-old Beijing residents tell reporters. She square neighbour, ago hers , Wang YongHong, on the list of treatment and cure of the government too. "Psychological pressure and discrimination that sequela brings even tormenting people than illness of the human body. My ex-husband finds people do not dare to take the lift with him after SARS recover. Seeing him, people go backwards one step subconsciously. The fear that SARS brings to people is on the human body, more spiritual. " Deep and vast to have to give up taking the lift finally, climb the stair and get back to the apartment on the 11th floor every day. Such a sport more serious his osteonecrosis. In 06, Long HeWang chose to divorce. The dragon says, the pressure lives really too largely after SARS. "Treatment and surgery with no limits have destroyed all our life and marriage, "She says. "After divorcing, I can continue the new life as the healthy person, but the patients are unable to get rid of this nightmare forever. Every day torment once, the last one frees and only commits suicide. " The dragon remarried again later, but she still looked after her ex-husband. "I can not bear to leave he alone, but I can't live in the shade of SARS in the latter half of one's life, "She says. In 2004, she wrote a letter and gave government hope the government can care about the person who didn't get sequela of the allusion quatation, but not got any response. Square Bohai Sea and other a dozen ward mates begin to appeal for help, hope the relatives of the dead can get the compensation payment of 300,000, and hope the government offers care to a sequela patient. Ministry of Public Health just agreed to the expenses of three items of main sequela of submitting an expense account in 2005. "It is not enough to only treat, they need to look after their person in latter half of one's life, "Wu JiaPing says. Her 25 -year-old daughter is a victim of sequela too. "My daughter takes oneself in one's arms even there is not the ability that the son breast-feeds. I can look after her now, but who look after her after I pass away? They need the policy of the government to ensure their life. " As the intersection of Wangjing and doctor of hospital, WeiHeng Chen 2003 work, resist forefront of SARS. He says the action of those years of the government has really saved a lot of patients' life, though some survivors have nowadays encountered a lot of questions. " the side effect of hormone treatment exists worldwide, " He says. "And at that time in order to save someone's life, used this kind of method to give no cause for much criticism. Moreover, compared with the sequela patient of other hormone treatments, the recovery and treating and already can be regarded as a good one of SARS patient. " Wrote articles in 2003 and reminded the consequence that treatments brought of hormone of government if old. "But because the government has no experience of dealing with this kind of question, just make a response after spending several months, "He says. He thinks the present working result of treatment is good, but he hopes the charge free treatment under government's subsidy can continue. On every Tuesday, doctor Chen visible Beijing hospital offers and specially directs against the sequela patient's free clinic. He relieves the agony of osteonecrosis with traditional Chinese medicine treatment, delays the time for operation. "This is illness of following all one's life, it is unable to be totally cured, can only delay the deterioration of the condition, "He says. "These patients' requirement is not excessive, I want to consider whether could accept their request. " However, the side has already given up his appealing for help, because his health has already begun to become weak, the state of mind was and different before too. "I know I have already become the burden of government and the society. I can only ask for but can't offer. But I have no idea. I have already lost ability to save oneself, " Some of him choke with sobs. Though the health is inconvenient, the side still apply to become the volunteer of 2008 Olympic Games, and participated in volunteer's working on National Day of the 60th anniversary of last year. " I want to reciprocate to the society to some extent too, " He says. He is unable to undertake the full-time volunteer's work because of health, but he gets a watch as the souvenir. He has been wearing it cherishing all the time. The patient of sequela took medical risk for public interests when accepting hormone treatment originally, the speciality of social security of People's University teaches Zheng Gongcheng how to say. "The treatment save they are but for protect more persons from, infect at the same time, "Professor Zheng says. "They have taken the medical risk for public interests, so the latter half of one's life when government and the society should look after them. It is not enough to only save them out from SARS. " He hopes the government can set up independent succour mechanism for these survivors, include treating and planning and affording the financial budget that they made half a lifetime enough. "And labour capacity that most sequela patients have lost the job, they can't succour themselves, so only government and the society can help them, " He says. "The medical treatment of China ensures being becoming gradually, but I think these victims require more treatment is in the reason. The government should consider carefully their request. " (China Daily reporter Peng YiNing)


|